Narrative Medicine
The sense of Story
Critical equipment for care
Het uitnodigen van prof.dr. Rita Charon, Columbia University, New York als Keynote speaker blijkt beslist een aanbeveling voor het congres met de titel ‘Narrative Care Conference’ in Enschede (8 maart 2013). Rita Charon is werkzaam als algemeen internist en Hoogleraar, maar tevens directeur van het programma ‘narrative medicine’. Een opvallende verschijning. Een tengere oudere vrouw in donkere kleding en een zachte vriendelijke stem. Een uur lang spreekt zij het publiek toe. Beter nog, gaat zij in gesprek met het publiek zonder dat zij daadwerkelijk antwoorden verwacht. Zij maakt geen gebruik van ondersteuning door plaatjes of teksten. Is ook helemaal niet nodig… De foto laat dat wel zien:
Rita Charon
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Borstkanker
Levendige (zeer confronterend) beschrijvingen over borstkanker zijn er al van eeuwen geleden. De nonnenkloosters vormen een bron van informatie. De ‘pink ribbon’ beweging in de Verenigde Staten doet het voorkomen of borstkanker iets is waar je tegen moet vechten en waardoor je leven ten goede kan veranderen. Rita Charon noemt enkele slogans. Er is een heel andere kant. Zij ontvangt mailberichten van patienten die zeggen ‘mijn leven was goed en toen kwam borstkanker’. Rita Charon verhaalt over een patiente die dapper allerlei procedures doorstaat, genezen wordt verklaard, weer een recidief krijgt, weer procedures doorstaat. Plotseling is het vertrouwen verloren en verlangt zij onderzoek na onderzoek. Niets stelt haar gerust. Totdat Rita Charon als haar dokter zoveel zegt als “u en ik zijn sterfelijk, we kunnen nu niets vinden, maar dat vormt geen garantie”. Samengevat: “Not leave her alone with her fear”. Laten we die zinsnede vasthouden.
Rita Charon
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Website:
https://jamanetwork.com/journals/jama/fullarticle/194300
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Although I can’t read it, I love the pictures you took of me! Thank you for spreading the word about our work to the Dutch. It means a great deal to me. Warmly, Rita